Welcome to The Congenital Heart Disease Website.
Website last updated: 22/11/2011
Funnel plots are currently being done for the new analysis figures and will be updated shortly.
The data on this website has been updated with validated data up to April 2010 with 30 day and 1 year follow up information. Our validation cycle for April 2010 - March 2011 is not yet complete for all centres, so the data for that year should be regarded as provisional.
The site has been created by UCL NICOR (the National Institute for Cardiovascular Outcomes Research). It aims to give older patients and the parents and carers of children with congenital heart disease information to help them make important decisions about treatment.
Among the information it provides are profiles of every congenital heart disease centre in the UK, including the number and range of procedures they carry out and survival rates for the most common types of treatment.
Patients, parents and carers are encouraged to regard the facts and figures in the site as a useful source of information. This knowledge can then be used together with the information they receive from their family doctor and heart specialist in making any decisions on treatment options.
The Congenital Heart Disease portal has been developed by UCL NICOR (the National Institute for Cardiovascular Outcomes Research), using information collected by its Central Cardiac Audit Database (CCAD). This has been done in collaboration with the Society for Cardiothoracic Surgery and The British Congenital Cardiac Association (BCCA) formerly the British Paediatric Cardiac Association. The website has been funded by the Healthcare Commission
We welcome your feedback about how useful you have found the information on this website.
How to use this information
For more information about how to interpret the information and more information about the site, go to information for patients